Angels Among Us ~~ Miss George

Miss George appears first in our lives in 1982 and in my memoir, A Long Awakening to Grace, on page 93. She accompanies us on our journey for a year and through page 95.

She was the best teacher my son ever had. And that is significant because in all the schools he attended, most of the teacher’s only expressed frustration or worse with him. School was traumatic for Doug and for our family.

These excerpts from my memoir will give you a sense of Miss George’s quality as a human being and a teacher.

“…when it came time for my first parent-teacher conference, I braced myself. I suffered pounding tension headaches every time I entered a school building, even if just to watch one of my children perform in a program.” 

When I called Kettering City Schools three years ago to find her, I was told that I was not the only parent who had called looking for her. Miss George was an outstanding teacher loved by many parents and students.

This next excerpt from my memoir will show why I love her.

“She said, ‘Doug’s making good progress in his studies. He’s pleasant and cooperative in the classroom.’

I burst into tears. 

Miss George leaned toward me, a puzzled look on her face. 

… ‘This is the first time I’ve heard anything good about my son from a teacher in years.'”

 

The kindness she extended to our family will always be appreciated.

“After our conference, Miss George sent home ‘Happy News Telegrams’ and lengthy notes about improvement in Doug’s behavior and work. She often wrote, ‘I’m very pleased with him, and you should be, too.'”

Unfortunately, because of a serious health condition, after twenty-three years of teaching, Miss George had to give up the job she loved. Teaching defined her life and was the purpose for which she lived. Now she struggles with living day to day. But that has not dampened her spirit and attitude.

Saturday, I had lunch with her to gift her with a copy of my book.

Miss George

When I told her she was in the book, her eyes brightened and she asked, “Can you show me where?” I opened the book to page 93 and she read those two pages where she appears.

She was so excited and kept thanking me. In truth, she is the one who deserved my gratitude. She was an angel and a bright spot in our life. And when we are going through a rough time, we need such angels.

Saturday I could see that I was a bright spot in her difficult life. I’m grateful I had the opportunity to repay her in some small way for the enormous gift of grace she extended to us so long ago.

Angels Among Us ~~ Julie

In my memoir, A Long Awakening to Grace, I write about angels who appeared in my life. Some were there to teach me lessons. Some were there to give support during rough times. And some were there to show me that despite what I thought about myself, I was worthy of being loved. If you look back and reflect on your life, I’m sure you will be able to identify angels who attended to you in some way.

This is the first of a series I will be blogging about to feature those who contributed in some way to my awakening to grace … who appear in my story as an angel. Wherever possible, I look forward to re-connecting with every one of them in person.

Julie first appears in my life in 1999, during my awakening to grace, and in my memoir on page 240 in the chapter titled, “Summoning Courage.” She is there through page 259 in the chapter, “Fire Walk.” She was the nurse who showed up to give support during a rough time. And she went above and beyond. On two of those days, she stayed two and a half hours beyond her twelve-hour shift to minister to us. I was grateful she was a compassionate human being as well as a skilled nurse.

Julie & Linda

A few years ago I reconnected with Julie at the Neon Theater where her talented son was unveiling his film, “For Francis.” I hadn’t seen her for about fourteen years and wasn’t sure I would recognize her. But a relative of hers helped me find her and it was great to see her again and to let her know that I was following up on her suggestion.

In 1999, on the second occasion Julie stayed beyond her twelve-hour shift, she came to see how we were doing. While listening to my daughter tell a portion of our story, Julie looked at me and repeated three times, “You need to write a book about this.”

I’m not sure what went through my mind at the time, but this was not the first time someone had suggested I write a book. Compliments were scarce in my family growing up, but both my father and my brother told me on different occasions that I was a good writer and should write a book. I had no idea at that time what I would write about.

When I was in seminary, my professors praised my concise writing and the depth of my thinking. One of my academic papers was published in two University of Dayton journals. The one that thrilled me the most was, “Explorations: Journal for Adventurous Thinking.” I loved being thought of as an adventurous thinker. These experiences showed me that I had the capacity to write a book, but I still wasn’t sure what the topic would be.

I must have tucked Julie’s suggestion in the back of my mind because ten years after she made that suggestion, I took my first faltering steps in writing the story of my life. It was clear to me by that time that I had a story to tell.

Julie

Now, eighteen years after Julie’s suggestion, A Long Awakening to Grace has been published and launched out into the world. I recently had brunch with Julie to show her the culmination of her suggestion and to thank her for planting that seed.

Julie went home afterwards and read the book that day from start to finish. The next morning I received an e-mail from her that meant a lot to me.

I couldn’t put it down. I was mesmerized. Wow! I hope I can be that courageous a woman who can tackle obstacles with such grace in life. You, Linda, are a force! ~Julie Beck

In addition, her comment about my writing was music to my ears. She said that my words transported her right back into the hospital setting where she entered our lives. That is just what every writer wants to hear!

Julie and her husband have been going through their own rough time with health challenges. If my book gives her even a smidgen of the support she gave to us eighteen years ago, then I have fulfilled an important purpose for publishing and sharing my story.

Thank you, Julie, for being an angel in 1999 and for the suggestion you made about my writing a book. Writing my memoir gave me a whole new perspective on my life, helped me make sense of it, and was transforming. I am grateful to see that reading it made a difference to you. It is my hope that my journey will help and inspire all who read it.

Validation: “You make sense to me”

I believe that most of us long to be heard and understood.

Before I retired as an Imago Therapist, a major part of my work with couples involved helping them hear and understand each other. Imago Therapists teach couples a listening skill designed to promote understanding at a deep level, suspending a common need to be right until the other person makes sense to us even when we disagree with them. The partner receiving validation visibly relaxes. I experienced it as holy and sacred work.

I received validation for my experience as a mother from two books I purchased at the Myotonic Dystrophy Foundation conference in September. Not surprisingly, they were written by mothers of children with this puzzling multi-systemic neuromuscular disease that often goes undiagnosed for decades … twenty-two years in my experience.  

Marian Shannon Miller Lord

Shannon Lord died in 2013, the same year she first validated my experience. On page 277 of my memoir, A Long Awakening to Grace, I write about the decades of shame and guilt lifting from my shoulders as I listened to her validating 2011 presentation on the MDF website.

As one of the founders of MDF, her dying wish was to have her memoir published. An editor cousin and her husband fulfilled her desire and Larry brought Family Roots: A Mother’s Search for Meaning to the conference this year.

Larry Lord and Linda

Shannon was already an important person in my life. It is partly because of her encouragement to share our stories that I published my memoir. Reading her’s, I felt validated over and over. We shared many of the same feelings about our experience, we coped in similar ways, we asked many of the same questions and struggled with many of the same issues. We both searched for meaning in the midst of a disease that has robbed us of so much that others take for granted. I relaxed.

At the conference, I met Ann Woodbury. She printed her manuscript, Living with DM1: my family’s story, and made it available to conference participants. She is still in the publishing process. You may contact Ann on her Facebook page for more information.

Ann was part of a panel describing the experience of central nervous system symptoms in her husband and four children. From her description, I knew we had some things in common. After reading her manuscript, I again experienced validation for my experience as a mother. I relaxed.

Ann and I have messaged each other on Facebook and she commented, after reading my memoir, how similar our spiritual quests have been. I had noticed that, too, and found it interesting because our religious backgrounds are very different. Even though Shannon, Ann, and I come from very different backgrounds and are very different in many ways, we share a common bond.

Because I am not in a partnership committed to practicing Imago’s deep listening skill, I value every experience of validation wherever I find it … even in books. Most often I find this deep connection when I read memoirs. Guess that is why I love them so much.

Being validated reminds me of the magic of Imago and why I choose to become an Imago Relationship Therapist. It is exhilarating when someone important to you takes the time to make sense of your experience even when they may not agree. As Harville Hendrix, the originator of Imago theory and practice, points out on page 136 of his book Getting the Love You Want … “a whole world opens up to you.”

 

Deciding to Change

This post was originally written on September 4. It is a bit dated. I’m late in posting it because when I returned from my trip to the MDF conference in San Francisco (September 7-10), my experience there was more pressing. Then I had computer problems and my September 11 post was finally able to be delivered on October 9. I hope to be back on track now. Thank you for bearing with me.

The television program commemorating the twentieth anniversary of Princess Diana’s death on August 31, “Diana, In Her Words,” portrayed Diana maturing before our eyes. At first shy and reticent, she peered through her eyelashes as she held her head down, a close-lipped smile spreading across her face.

Later, with her shoulders back and her head held high, her eyes glistened as she flashed broad smiles.

During her interview for the program which was used this year to commemorate her death, Diana reflected on the moment she decided to change. Instead of succumbing to the self-defeating behavior issuing forth from her fear and jealousy, she resolved to focus outward on the downtrodden, making advocacy for them her life’s work.

She decided to align her efforts with a purpose larger than herself.

 I remember the moment I decided to change.

“… I felt ripped apart, like a fraud living a double life. I hated the incongruity …. It needed addressing, and I felt ready to face the challenge. I felt ready to make a change. And a big change was what was called for.”  ~excerpts from A Long Awakening to Grace.

 

“Unnerved at first, I felt as though I had been dropped into an alien world.” Page 125 of A Long Awakening to Grace

“It is in facing your conflicts, criticisms, and contradictions that you grow up. You will remain largely unconscious as a human being until issues come into your life that you cannot fix or control and something challenges you at your present level of development, forcing you to expand and deepen. It is in the struggle with your shadow self, with failure, or with wounding, that we break into higher levels of consciousness.” ~Richard Rohr

Almost thirty-three and a half years later, I am eternally grateful that I made that decision, took the steps to change, and stayed with it when the going got rough. I would not trade where I am today for where I was in April 1983. I learned that in that so-called “alien world,” I received the life-giving nurturance I needed to blossom and thrive.

As I listened to Diana reflect on her life and as I reflect on my own, I wonder ~~

What in your life do you need to change … or have you found the need to change in the past?

What step is the still, small voice of wisdom within encouraging you to take … or did encourage you to take in the past?

If you have decided to make a change, in what ways are you wiser today than you were when you took those first faltering steps? 

What change could you currently pursue that would lead you to higher levels of consciousness?

Exploring questions like these are the kinds of conversations that fuel my enthusiasm for life.

Strength in Weakness

“…for when I am weak, then I am strong.” ~II Cor. 10b

Due to website problems preventing subscribers from receiving posts, this is a re-post of my September 11 post.

The most important instruction given to those writing a memoir is to be honest about our shortcomings and to be generous in describing others so as not to demonize them. That is why we are encouraged to wait until the stings of life no longer throb intensely before we embark on writing a memoir for publication … keeping our eye on writing a story that serves a larger purpose and can be useful to others. It is a process.

In my process, for years I poured out my agony in my prayer journals, writing about shame-filled events that I have always had difficulty talking about. Finally, I reached the point where I was ready to embark on seriously writing a memoir.

Writing my story in a way that might be beneficial to others forced me to dig deeper and discover the treasure hidden in my pain. As a result, I emerged with a whole new and transformed perspective on my life and the people in my life.

Still, shame and fear of judgment prevented me from giving voice to some of my most painful experiences. Now that my memoir has been published, I worried about how to handle book signings. What parts of my book would I be comfortable sharing verbally with others.

Knowing that writing honestly opened me to criticism, I have kept Brene Brown’s book, Daring Greatly, on the book shelf above my computer as inspiration to keep moving forward. And because my book is now published and it is time to share my story with the world, I have kept Deborah Winegarten‘s wise counsel before me.

A special sister writer, Deborah focuses on the greater purpose her books serve ~~ giving her opportunities to connect with others and be present to them in their need.

And so, this past weekend I took my books to the Myotonic Dystrophy Foundation (MDF) conference in San Francisco. And by the way, Deborah joined me at her own expense to give me support and sell my books so I could connect with other conference attendees. She walks her talk and has fun no matter what she is doing. A great role model for me.

Deb Winegarten selling A Long Awakening to Grace

The first morning before heading to my author table, I sat on the edge of my bed and set my intention … to be present to the needs of others as I connected with them and to be mindful of my larger purpose in writing this book.

Myotonic Dystrophy (DM) is a multi-faceted disease with numerous physical, behavioral, and psychological components. Because the physical is easier to address, researchers have put their energy there. However, the behavioral and psychological cause the most concern and produce the most emotional pain for those carrying the disease and their caregivers. I have shared a wish with other members of the community that researchers give more attention to this aspect of the disease.

My opportunity to share my concern came during this Friday morning session: “Bringing the Patient Voice to Central Nervous System Targeting Drug Development.” James Valentine moderated while five patients and caregivers shared their experience. Then the floor was opened to hear from conference participants. I raised my hand immediately because the panel had not addressed the concern that is central in my family’s experience of this disease.

After a couple of other people shared, Mr. Valentine handed the microphone to me. I pointed out that the panel had not addressed anti-social behaviors ~~ the behaviors that my son had exhibited. I pointed out that I shared a concern with one of the founders of MDF that researchers address these behaviors. Then Mr. Valentine said, “Would you be specific about the behaviors your son exhibited.”

I gulped. And then I reminded myself of my intention set that morning to focus on the larger purpose of my memoir and my attendance at this conference. I hoped research would prevent other families from going through what we went through.

My hands began to shake. I looked at Mr. Valentine and told him that it is still very difficult for me to talk about. And then, in that ballroom full of nearly three hundred people, I gave voice to the behavior that had caused our family the most shame and pain. I shared how I had handled this behavior, noting that others may judge me for that, but it was what I had to do to preserve myself. Mr. Valentine thanked me and said the information I gave is needed.

“Shame derives its power from being unspeakable.” ~Brene Brown

Immediately, other conference participants approached me at the table where I sat tearful and still shaking to give me hugs and thank me. Later, in the restroom, a new member of the board wrapped her arms around me and said, “You are the bravest of a roomful of brave people.” Another woman noted how I had shared with courage and grace. For the rest of the conference, I received hugs and expressions of gratitude. I was told there are many in the room who could relate to what I had shared.”

One of my new DM friends asked me, “Are you glad you shared?”

I replied, “Sharing that was life-changing! I got a monkey off my back.” I am aware that judgment and criticism may still come, but in the warm embrace of my DM sisters and brothers who know, the shame demon I’ve carried for far to long dissapated like the warmth of the sun burning off fog.

If you read my memoir, you will know how big that was for me. It is a huge piece of being faithful to the person I was created to be … to fulfilling my purpose for this sojourn on earth. I hear the God of my understanding, my True Self within, proclaiming, “Well done my good and faithful servant.”

“Before I formed you in the womb I knew you, and before you were born I consecrated you;” ~Jeremiah 1:5a

Another Step Forward

In my July 2016 post titled A Second Chance, I reflected upon my daughter’s inability to continue working and need to move in with me following her surgery. I wrote, “The treasure I found is the ‘opportunity’ my daughter’s living with me gives. I am being given a second chance to extend love to her, up close and personal, in ways the immature self of my past was unable.

It is a bit of a miracle how well we have adjusted. My friends who watched me struggle in the early months are amazed at how my relationship with Nicole has evolved. I’m kind of amazed myself.

During my five months of struggle to accept our new reality, I realized that my relationship with my daughter was more important than keeping my home perfect. I intentionally let go of having my sanctuary in perfect order. That is something the immature me from my past could not have accepted.

To my delight, my daughter has worked to respect my need for order and beauty in my living environment. She is neater than she used to be and has voluntarily assumed responsibilities without my even having to ask. That has meant a great deal to me.

Then, about a month ago, she approached me and said, “Mom, if I could afford one of those walk-in tubs, would you let me get one?”

 

I knew she couldn’t afford it, but told her to go ahead and explore it. I thought her realizing that for herself was better than my nixing her request, something my immature self would have done.

And so she made a date with a salesperson to come talk with us. As I listened to his explanation of the benefits, my perspective started to shift. I thought this might work well for me, too.

As long as Nicole lives with me, I don’t have the option of moving into an assisted living facility. I’m not ready for that yet, but foresee the day when it might be a welcome option. The salesperson spoke about home healthcare aids having an easier time bathing frail, elderly people. That would address one of the issues I might face as I grow older.

The salesperson went outside and left us alone to make a decision. Nicole asked me, “What are you thinking, Mom?”

Later, as I reflected on our conversation, I realized that our relationship  had shifted from a hierarchical mother-daughter one to a more equal partnership.

I told her what I realized about how the tub could benefit me as well. Then I addressed the issue of finances. “This is how much money you have to put toward it. This is how much I could put toward it. The rest we would have to finance. That means we would need to reduce our monthly expenses.”

Her immediate response astounded me. “I’ll give up watching the Hallmark Channel.” That is a major form of entertainment for her. I suggested we visit some friends who have cut the cord with cable and explore alternative ways of watching our favorite programs. She agreed and we are in the process of taking this step.

I told her we could make a game of saving money.

I mentioned that she spends a lot of her grocery money on snacks, that they are expensive, and they aren’t good for her anyway. She is definitely her mother’s daughter. She loves potato chips as much as I did before a stent being placed in my heart in 2005 convinced me they were a luxury I could no longer afford. Nicole has not eaten a potato chip since we made this decision. Another huge decision for her.

The hardest thing for me to give up was having the house cleaned once a month. We decided to do it ourselves and we did a pretty good job working on it together. That is truly a miracle in itself. Still, I hope we will be able to add that back in after our other cost-cutting endeavors.

Nicole’s tub was installed last week. Here she is showing it off to Jacqui, who is living with us for awhile., having just returned to the States after a year in Taiwan. (And Jacqui hasn’t turned gray. She was being silly and wearing a wig.)

That tub is definitely evidence that my relationship with Nicole has entered a new phase. We have both shown evidence of maturing in our ability to demonstrate our love for each other. I am eternally grateful for this step forward on both our parts.

P.S.: I treated her to a bag of potato chips this week. I thought she had denied herself long enough. 🙂

Strength in Weakness

“…for when I am weak, then I am strong.” ~II Cor. 10b

The most important instruction given to those writing a memoir is to be honest about our shortcomings and to be generous in describing others so as not to demonize them. That is why we are encouraged to wait until the stings of life no longer throb intensely before we embark on writing a memoir for publication … keeping our eye on writing a story that serves a larger purpose and can be useful to others. It is a process.

In my process, for years I poured out my agony in my prayer journals, writing about shame-filled events that I have always had difficulty talking about. Finally, I reached the point where I was ready to embark on seriously writing a memoir.

Writing my story in a way that might be beneficial to others forced me to dig deeper and discover the treasure hidden in my pain. As a result, I emerged with a whole new and transformed perspective on my life and the people in my life.

Still, shame and fear of judgment prevented me from giving voice to some of my most painful experiences. Now that my memoir has been published, I worried about how to handle book signings. What parts of my book would I be comfortable sharing verbally with others.

Knowing that writing honestly opened me to criticism, I have kept Brene Brown’s book, Daring Greatly, on the book shelf above my computer as inspiration to keep moving forward. And because my book is now published and it is time to share my story with the world, I have kept Deborah Winegarten‘s wise counsel before me.

A special sister writer, Deborah focuses on the greater purpose her books serve ~~ giving her opportunities to connect with others and be present to them in their need.

And so, this past weekend I took my books to the Myotonic Dystrophy Foundation (MDF) conference in San Francisco. And by the way, Deborah joined me at her own expense to give me support and sell my books so I could connect with other conference attendees. She walks her talk and has fun no matter what she is doing. A great role model for me.

Deb Winegarten selling A Long Awakening to Grace

The first morning before heading to my author table, I sat on the edge of my bed and set my intention … to be present to the needs of others as I connected with them and to be mindful of my larger purpose in writing this book.

Myotonic Dystrophy (DM) is a multi-faceted disease with numerous physical, behavioral, and psychological components. Because the physical is easier to address, researchers have put their energy there. However, the behavioral and psychological cause the most concern and produce the most emotional pain for those carrying the disease and their caregivers. I have shared a wish with other members of the community that researchers give more attention to this aspect of the disease.

My opportunity to share my concern came during this Friday morning session: “Bringing the Patient Voice to Central Nervous System Targeting Drug Development.” James Valentine moderated while five patients and caregivers shared their experience. Then the floor was opened to hear from conference participants. I raised my hand immediately because the panel had not addressed the concern that is central in my family’s experience of this disease.

After a couple of other people shared, Mr. Valentine handed the microphone to me. I pointed out that the panel had not addressed anti-social behaviors ~~ the behaviors that my son had exhibited. I pointed out that I shared a concern with one of the founders of MDF that researchers address these behaviors. Then Mr. Valentine said, “Would you be specific about the behaviors your son exhibited.”

I gulped. And then I reminded myself of my intention set that morning to focus on the larger purpose of my memoir and my attendance at this conference. I hoped research would prevent other families from going through what we went through.

My hands began to shake. I looked at Mr. Valentine and told him that it is still very difficult for me to talk about. And then, in that ballroom full of nearly three hundred people, I gave voice to the behavior that had caused our family the most shame and pain. I shared how I had handled this behavior, noting that others may judge me for that, but it was what I had to do to preserve myself. Mr. Valentine thanked me and said the information I gave is needed.

“Shame derives its power from being unspeakable.” ~Brene Brown

Immediately, other conference participants approached me at the table where I sat tearful and still shaking to give me hugs and thank me. Later, in the restroom, a new member of the board wrapped her arms around me and said, “You are the bravest of a roomful of brave people.” Another woman noted how I had shared with courage and grace. For the rest of the conference, I received hugs and expressions of gratitude. I was told there are many in the room who could relate to what I had shared.”

One of my new DM friends asked me, “Are you glad you shared?”

I replied, “Sharing that was life-changing! I got a monkey off my back.” I am aware that judgment and criticism may still come, but in the warm embrace of my DM sisters and brothers who know, the shame demon I’ve carried for far to long dissapated like the warmth of the sun burning off fog.

If you read my memoir, you will know how big that was for me. It is a huge piece of being faithful to the person I was created to be … to fulfilling my purpose for this sojourn on earth. I hear the God of my understanding, my True Self within, proclaiming, “Well done my good and faithful servant.”

“Before I formed you in the womb I knew you, and before you were born I consecrated you;” ~Jeremiah 1:5a

The Voice Inside

August 31, we observed the 20th anniversary of Princess Diana’s death. My daughter and I watched a couple of the many television programs commemorating her life. I found myself paying close attention to “Diana: Her Own Words” based on the interviews she gave for Andrew Morton’s book, Diana: Her True Story.

“Everyone who wills can hear their inner voice. It is within everyone.” ~Mahatma Ghandi 

What struck me most as I listened to Diana reflect on her life was the number of times she referred to “the voice inside.” Throughout, her inner voice of wisdom spoke to her powerfully and humbly. Despite all the hoopla that surrounded her, she noticed and observed the wisdom that lived within her. She did not always heed the wisdom revealing the truth aligned with her soul.

I suppose I took note of this part of Diana’s story because I could relate. I, too, did not always heed the guidance coming from my inner voice of wisdom. I paid more attention to outside influences than to nudges from my soul. It is in that juncture that true suffering is born. It is part of what contributed to my awakening to grace being so long.

“I took note of this unmistakable warning–the first time I had received such an unambiguous message from the still, small voice of wisdom within. The next day I tried to give expression … I was unable to advocate for myself. Sadly, I possessed little relationship with my depths, my inner voice of wisdom. … I didn’t know myself or the importance of choosing a path in alignment with my soul.” ~excerpts from A Long Awakening to Grace

Just as Diana did, I tried to make the best of the wrong turns I had taken in my life. I discovered that if I kept my heart open and trusting, I would learn valuable lessons along the way.

  • All is not lost when we take a wrong turn.
  • There are treasures to be found in our suffering and in our search for the meaning of our life.
  • In silence and stillness, and sometimes in our dreams, we are more likely to hear our inner voice of wisdom.
  • Contemplative writing often results in wisdom flowing from our pen. (We can experience wisdom flowing from any form of meditation or artistic expression.)
  • In nature, if we pay attention, Divine wisdom and guidance often emerges.

“If you have a deep desire to move forward, a way is being prepared for you.” ~Bryant McGill

It was speculated that Diana was looking for a new way to move forward in her life when she died at thirty-six. And while we will never know the extent of the life lessons she learned in her short life, it was clear to me as I watched this program that she had already learned a few valuable lessons. Perhaps the intensity of her experience forced her to learn more quickly. I have no doubt that if she had lived, she would have grown in her ability to trust her “voice inside.”

Fortunately for me, I had many more years to learn to listen to the still small voice of wisdom within me … to glean the treasures from my life experience…treasures I share in

 

Celebrations

It was a long day. My Michigan friends, Tom and Sarah, were visiting. Sarah and I grew up together in New Bremen, got married about the same time, and were pregnant at the same time in 1968. Their daughter, Connie, is two weeks younger than my son, Doug. While our children grew up, we visited each other twice a year, alternating between Ohio and Michigan. It had been two years since we had seen each other. The picture below shows Tom and Sarah with Connie, her husband and daughters.

Don, Carolyn, Sarah, Megan, Tom, and Connie

Nicole had an appointment with her OSU neurologist Tuesday afternoon, August 15, so I scheduled an appointment with a Columbus attorney in the morning. I no longer like driving the interstate and wanted to double up on these appointments. Sarah accompanied us to these appointments.

I had been referred to Matthew Gibson because he specializes in estate planning when there is a disabled child involved. Sarah sat in on the meeting and took copious notes for me. Nicole and I really liked him, but it was a stressful meeting. I had made an outrageous request of a friend to handle Nicole’s finances after I’m gone. We called her so she could ask the attorney questions. I hate having to ask friends to assume this responsibility and am grateful for their willingness.

Sarah, Nicole, and I had a lovely lunch after seeing the attorney and then headed for our OSU appointment. Unfortunately, we missed a turn and got lost and never made it. And so we switched gears from frustration at having to reschedule with OSU to excitement about what awaited us at home.

The proof for A Long Awakening for Grace was slated to arrive that day. My friend, Diana, wanted to be present when I opened it. We called Tom to make sure it had been delivered and then called Diana to alert her to our impending arrival home.

Jim & Diana

Diana and her husband, Jim, came with sparkling juice and wine glasses to toast the occasion. After the drum roll, I opened the package.

The big moment

My daughter cried. When I asked if she could share with me about her tears, she said, “I was just thinking about all we went through.” Then she joined in the celebration. I can’t tell you how much I appreciate her support.

Nicole

I’m so aware that in the midst of the chaos that surrounds us these days, we have much to celebrate. I am determined to notice and honor the emergence of joy and love wherever I find it. When we look, we find that it abounds. This day I celebrated with friends … the satisfaction of a job well done. Yesterday Nicole and I celebrated the wonder of the Universe, watching the eclipse from our front yard, chuckling at my space kitty’s interest as we watched the eclipse on Nova that evening.

Kiko

And as I write this, the second proof is due to arrive. Later, Nicole’s new visiting physician will arrive. We will celebrate again, in the midst of the ordinariness and extraordinariness of life.

Making Outrageous Requests

My SCN sister writers and I have been learning how to make Outrageous Requests. Our teacher, Debra Winegarten, is a master at it. She says the important thing is to ask. We never know what response we will get … “Yes,” “No,” or a counter offer. I’ve been practicing.

Outrageous Request #1:

Last February during my daughter’s appointment, I asked Dr. Kissel, “Do you have time to read anything besides medical-related literature?”

John T. Kissel, M.D.
Chair, Dept. of Neurology
Director, Division of Neuromuscular Medicine
OSU Wexner Medical Center

He said he did.

“Okay, then I’m going to make an outrageous request.” I pulled a packet from my bag and handed it to him. “Would you read my memoir?”

His eyes widened. The packet was huge because my approximately 80,000 words were double spaced and printed on one side of 8 1/2 by 11 paper.

Then I said, “If you like it, I’d be honored if you would give me a blurb for my back cover.”

“How soon do you have to have it?” he asked.

I didn’t know. I was still in the final stages of working with my developmental editor, and my manuscript hadn’t yet been copyedited. I hadn’t submitted it to that prestigious hybrid publisher for vetting.

Fast forward to July 2017. During my mad dash toward publishing with April’s assistance, I contacted him and said, “If you are willing to give me a blurb, now would be the time.” He actually sent me two and below is the one I chose:

“One of my physician colleagues, when asked how he dealt with ‘such depressing neuromuscular diseases,’ replied, ‘I have the greatest job in the world because I get to work with heroes every day.’ This remarkable memoir chronicles one such hero’s quest to find an answer to a genetic riddle that had severely impacted her family for decades. The story is moving, meaningful, and inspiring and reading it has made me a better doctor. It is a tremendous resource for other families in similar situations.”  ~John T. Kissel, M.D.

We couldn’t fit all that on the back cover, so we edited to capture the essence of what he wrote. I think he will approve.

“This remarkable memoir is moving, meaningful, and inspiring. Reading it has made me a better doctor. It is a tremendous resource for families dealing with genetic riddles.” ~John T. Kissel, M.D.

What a gem of a doctor, Dr. Kissel is. I’m so grateful he is in my daughter’s and my life. The first time we saw him, he asked me how I was doing. He is the first doctor ever to do that. I breathed a sigh of relief. Finally we have a doctor who gets it.

Outrageous Request #2:

With time being of the essence, I didn’t think I had time for my original plan for my memoir’s cover. So I started looking for an alternative.

That artist/photographer from Paris I featured in my June 30 post had a project that fascinated me, Mimesis. I was drawn to one of Janiak’s images and thought it would be a good choice for the cover.

I imagined that, even if Jeb gave me permission, it would be way out of my price range. But I wouldn’t know unless I made an OR. And so I did. He didn’t respond immediately, but when he did, he was willing for me to use the image, at a fair price I thought. But because he is busy working on another project, he didn’t have time to draw up a contract. I didn’t feel comfortable not having a contract, but was proud of myself for asking. And I got a better response than I anticipated.

Outrageous Request #3:

It is also important to have another writer in your genre give you a blurb. One of my Story Circle Network sister writers is an award-winning memoirist from whom I have learned a lot. My memoir is better and deeper because of what Susan J. Tweit has shared in our group about the process of writing memoir.

Susan J. Tweit

When I read Susan’s memoir, Walking Nature Home: A Life’s Journey, I experienced her as a deeply spiritual woman. I knew she would understand the spiritual aspect of my journey.

I knew what all Susan had on her plate. I would have to make a HUGE OR. I gathered my courage and on July 16, I sent her an e-mail request.

It is customary to give another author at least three months to read and respond. Only if your writing and story are good enough, something an author would feel okay about putting their name to, do you get the requested blurb.

Susan had to think about it and see if she could work the reading into her already packed schedule. When I heard from her, she let me know there was no guarantee she would be able to give me a blurb, but she wanted to be supportive. She gave me a time frame and said if I didn’t need it until then, she thought she could get the book read.

I gave her five more days and told her I would be disappointed if she didn’t like my memoir, but would still admire her and would deal with it. I didn’t want her to feel obligated or pressured in anyway. I wanted her honest assessment. And so I waited.

She finished one of her writing assignments early and was able to work reading my memoir into her schedule. She didn’t need the extra five days. She saw my book as written in a way that will be helpful and inspiring to others. I was thrilled, as you can imagine, with her affirmation:

“A Long Awakening to Grace shows the transformative power of an open heart and questing spirit. Faith buoys Linda Marshall through decades of family pain and tragedy caused by a mysterious genetic condition. Over the course of this inspiring journey, love opens the way for profound healing.” ~Susan J. Tweit

Pure Gift … I didn’t even have to ask:

And then April, author of five novels and self-publishing champion and my mentor par excellence, generously gave me a blurb for inside the book. She captures another part of the story:

“Linda’s memoir is more than just a retelling of her life story. This work of nonfiction functions on so many levels. In addition to being a brilliantly insightful spiritual exploration and narrative about a rare genetic disorder, it’s the quintessential story of the American woman born in the 1940s, growing up in the 1950s, and dealing with stifling gender roles imposed on American women of that era.”

As you can see, I am richly blessed … and these past few weeks I’ve been experiencing showers of blessings. Please celebrate with me. I am so grateful.

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