Ponderings So I’ve been pondering … what caused me to lose my equanimity with a doctor’s office while advocating for my disabled daughter? Why did having to push buttons, be put on hold, be cut off, having to call again and push more buttons only to be told I’d have to get a referral from […]
Caregiving
Angels Among Us: Marvel ~ ~ Part II
In February 2018, I wrote about Marvel in my “Angels Among Us” series. These angels are friends who appear in my memoir, A Long Awakening to Grace, because they helped me get through some tough times. Marvel continues to be an angel in my life … and in the life of my daughter. I mentioned […]
Caregiver Update
Noticing Sensations For the first time in three years, I have been gifted with two experiences of being “home alone.” When Marvel took Nicole swimming. I noticed how good it felt to have the house to myself. When Carol took her to her birthday lunch, I noticed again that same sensation in my body. I […]
Caring for the Caregiver
Depression The past few months I notice a change in my daughter’s behavior. She sleeps more (and she already sleeps a lot because daytime sleepiness is one of the symptoms of her disease), spends more time in her room, doesn’t eat as much, is even more non-communicative than usual, complains of aches and pains. After […]
