In February 2018, I wrote about Marvel in my “Angels Among Us” series. These angels are friends who appear in my memoir, A Long Awakening to Grace, because they helped me get through some tough times. Marvel continues to be an angel in my life … and in the life of my daughter. I mentioned […]
Caregiving
Caregiver Update
Noticing Sensations For the first time in three years, I have been gifted with two experiences of being “home alone.” When Marvel took Nicole swimming. I noticed how good it felt to have the house to myself. When Carol took her to her birthday lunch, I noticed again that same sensation in my body. I […]
Caring for the Caregiver
Depression The past few months I notice a change in my daughter’s behavior. She sleeps more (and she already sleeps a lot because daytime sleepiness is one of the symptoms of her disease), spends more time in her room, doesn’t eat as much, is even more non-communicative than usual, complains of aches and pains. After […]
