Angels Among Us ~~ Alice

Friends who have read my memoir and especially those who have accompanied me on my journey the past eight years of bringing my book into the world have been remarking about how just the right person has come along at every juncture in my life to take me to the next level. That, too, has amazed me. If I ever doubted that the Universe has my back, writing and publishing my memoir has dispelled any lingering uncertainty.

Shirley, the Angel in my November 24 post, and Alice, the Angel I am featuring today, were people from the church who extended love to me at times in my life when I needed to know that I am Divinely loved, that I am a person of worth, and that I am capable of much more than I realize. The Universe had plans for me I couldn’t even begin to imagine.

I’ll bet if you think about it, you can point to a person or persons from your childhood or youth who changed the trajectory of your life. That one person for me is Alice.

Alice

Alice moved to my hometown when I was about twelve to serve as the parish worker in our church. She appears in two places in my memoir because her influence in my early life was great.

Because she was new in town and didn’t know many people, she welcomed frequent visits from my friend Saundra and me. We always had fun at Alice’s apartment. My most precious memories, however, are the times when I was alone with Alice. I carried the following secret in my  heart related to Alice. When she read A Long Awakening to Grace, she was shocked to learn about it.

“I remember most how Alice made me feel. When we spent time alone, she treated me as someone important to her. She listened as though interested in what I thought and how I felt. She didn’t seem to consider it ‘weird’ talking about serious topics. She gave me the individual attention I received from no one else. I felt ‘at home’ with Alice and wished she could adopt me so I could live with her.” ~Page 27 of A Long Awakening to Grace

And then, when my high school graduation was nearing, Alice changed my life’s path. She asked me what I planned to do after graduation and recommended I go to college. I didn’t think I was smart enough, no one at home or school had suggested it, so I hadn’t given it any thought. I am forever grateful for her suggestion. And I’m grateful I was wise enough to follow it. Going to college opened opportunities that I would otherwise not have had … including meeting people who could take me to my next level of my development.

It took fifteen years and a second recommendation for me to heed her next suggestion. Alice was the first person to suggest I consider a career in the church.

“‘You should think about being a parish worker like me.’ … I tucked Alice’s recommendation in the back of my mind …” Page 11 of A Long Awakening to Grace

Alice’s suggestion led me to Bowling Green State University and a major in Business Education. I didn’t know myself well back then and chose a major that wasn’t a good fit for me. I took a circuitous path through United Theological Seminary, Living in Process and Imago Relationship Therapy trainings that revealed a counseling ministry as a better fit.

And now, after publishing my memoir to such high praise from readers, I wonder what life might have been like had I pursued creative writing. Even though I was selected by the faculty to be the editor of our high school newspaper, that was a possibility that never occurred to me. I knew no one and had never heard of anyone who had followed such a path.

It is not too late, however. What lights up my life these days is increasing my learning about the craft of writing. Despite my eighteen-year-old attitude that I wasn’t smart, thanks to Alice, I have emerged at seventy-five into a life-long learner. It is what makes my life meaningful.

“Conscious aging is about having meaningful goals for our elderhood that spring from our authentic selves and using the power of intention and inner work to make our vision a reality. It is about having the courage to aim high in an unconscious world.” ~Ron Pevny in Conscious Living, Conscious Aging: Embrace & Savor Your Next Chapter.

On Being Relational

David Letterman

“I’m here tonight because of hundreds, probably thousands of people who helped me.” ~Dave Letterman upon receiving the Mark Twain Prize for Humor.

When I heard Dave Letterman acknowledge that he was successful because a lot of people helped him get there, my admiration for him expanded. Not that I disliked him before. I’m just an “early-to-bed” kind of person and miss all the late night shows.

His words demonstrated to me that he is a “relational” guy. He named some of the people who helped him and acknowledged the talents of several who he believes deserves the Mark Twain Prize every bit as much if not more than he does. I liked that.

In the 1990’s I trained with Harville Hendrix. He and the woman to whom he is married, Helen LaKelly Hunt, co-developed Imago Relationship Therapy. I retired in 2012, but still value this community of therapists and their partners who devote their lives to improving their own relationships and helping others do the same.

Recently one of my friends and colleagues, Ani, told me that Harville no longer likes the word psychology because of its orientation toward individuality.  I agree with him because, in my opinion, we’ve gone too far with the “pull yourself up by your bootstraps” mentality that is pulling our culture apart.

Click here for an interview with a linguist that gives the interesting origin of that phrase which started as an insult and has morphed into an admirable quality and cultural demand that is not serving us well.

Harville has coined a new word that I think is much needed in our times. His word is “RELATIONOLOGY.”

Harville Hendrix

It seems to me and many people whom I respect that our culture is based on an illusion of separation. No matter how it looks, we are not separate. We are one. And much of the loneliness and angst we experience in life comes from the emotional distance that results when we act out of a belief that we are separate.

Think about what means the most to those facing terminal illness and death…their loved ones…be that family or close friends who are like family. Trophies, awards, accolades, and material wealth mean little if we aren’t surrounded by those we love. Somehow, when our life is going well, we often forget what matters most.

I am receiving a lot of positive responses to my memoir, A Long Awakening to Grace. Some of them are beyond my wildest imaginings. I am being referred to as an amazing woman. Those are words I never expected to hear and I enjoy hearing them and am grateful to receive them.

However, I am keenly aware that whatever writing and publishing success I am experiencing…whatever growth has turned me into an amazing woman…I must attribute to Divine guidance and the many people who came into my life during my journey to grace as “God with skin on.” I call them angels.

My blog series, “Angels Among Us,” is to acknowledge those people. I have indeed been blessed. I have a lot of material to continue writing this series for a good long while.

Once I’ve acknowledged all the folks mentioned in my memoir, I have more angels to write about … those who taught me to write well, those who helped me revise my manuscript, those who gave me advance praise and blurbs, those who helped me with the task of publishing, those who helped design the cover, those who are currently mentoring me with marketing (something I am attempting to do from a relational paradigm) and those who are writing wonderful reviews. The list goes on and on. I am so blessed.

It is clear to me that A Long Awakening to Grace is not all my doing.

And so, I ask you, as you read about my angels, to reflect on your own. We all have them. If we look up from our cell phones and social media long enough, we might more easily recognize them. And I think we could all benefit from paying more attention … for taking time to appreciate who matters most in our lives.

Please join me in giving a hearty hip, hip, hooray for this new word in our vocabulary … a word with the potential for drawing our culture back to our spiritual roots. We are all one … interconnected … created to be relational beings. We have so much to learn about and so much to benefit from embracing …

RELATIONOLOGY

Have a Happy Thanksgiving with those who matter most to you.

Unexpected and Continuing Gifts of Grace

People often ask memoirists why we write the story of our life.  Writing is for me a spiritual practice — an exploration of the deepest terrain of my soul. I felt compelled to write my story. In the beginning stages, I couldn’t have told you why.

In my studies on the art of writing memoir, I learned of the importance of writing honestly about our shortcomings … of not glossing over our flaws and failings. I was determined to be as honest as possible. That meant facing head on a fear I had lived with from a young age … the fear that there was something wrong with me that made me unlikable and unlovable. You may remember that I kept Brene Brown’s book, Daring Greatly, in the book cubby above my writing desk.

At the end of eight years of writing A Long Awakening to Grace, I received a whole new perspective … my life finally made sense. The writing proved to be healing and transforming … an unexpected and welcome gift of grace.

Publishing what I wrote was another matter. I needed to let go of a coping mechanism I had used since childhood to avoid criticism … being quiet and invisible.

For many years as an adult, I hid. I cut myself off from old friends who would have wanted to know what was going on. I didn’t want to tell them.

Except for my twelve-step support system where it was safe to be open and vulnerable, I lived a double life. I avoided people and activities where I might need to reveal my life beyond the superficial. In my professional associations, I didn’t talk about the nitty gritty details of my personal life, even with colleagues I trusted.

Publishing my memoir was a big deal. In exposing my flaws and shortcomings to my readers, I risked the possibility of actualizing my childhood fear of being judged unlikable and unlovable. My editors even prepared me for such a possibility.

“Vulnerability is the birthplace of love, belonging, joy, courage, empathy, and creativity. It is the source of hope, empathy, accountability, and authenticity. If we want greater clarity in our purpose or deeper and more meaningful spiritual lives, vulnerability is the path.” ~Brene Brown

 

The truth of Brene Brown‘s words revealed itself in these comments from readers:

“…it took courage to be so open and vulnerable.”

“…your honesty and vulnerability shown through … You are a true hero in my eyes.”

“Your willingness to be vulnerable and open about your challenges and struggles and self-criticism leave me in awe.”

If there are readers out there judging me, they are keeping quiet. If and when judgment comes, these voices will override them:

“You memories have given me hope I can survive the past two devastating years.”

“…your sharing has given me strength and courage. …your brave vulnerability has been healing for me and I am extremely grateful.”

“Your story confronted me and gave me hope.”

“Your book will bless many people.”

 

More words of wisdom from Brene Brown:

“Courage is contagious. Every time we choose courage, we make everyone around us a little better and the world around us a little braver.” Brene Brown

And then last week, an awareness began to float to the surface of my consciousness. I’ve put it all out there … my worst stuff … for the world to see. I no longer need to hide. I’m truly free … another unexpected and welcome gift of grace.

Ranting

This is the first time in my memory that I have used this forum to rant. I think the gray-haired among us will relate. Lately, I’ve been tearing my hair out over technology. I do fairly well for someone my age, but I have my limits.

When my computer works well, I’m grateful to be able to interact with a world beyond my neighborhood, city, and country. When it isn’t working, I invariably can’t understand why and don’t know what to do to fix it. Sometime in September, the Jetpack plug-in just disappeared from my website. That meant my subscribers were not receiving my blog posts. And I didn’t know it until after I had posted twice, one being a very significant post. I also received feedback from another writer about my website. It needs an update. It couldn’t have come at a worse time.

Because I have no whiz-kid grandchildren, I have to “fork-over-dollars.” And in that realm, I also have my limits.

The months of September and October 2017 have been filled with anxiety and frustration as I’ve attended to several time-consuming matters, some of which involved an outlay of dollars:

  • updating my will and trust,
  • dealing with the Jetpack and other website issues (update still not resolved),
  • getting leaks to Nicole’s new tub and around the old tub in my bathroom fixed

Others were designed to save me money as the prices of everything are increasing in 2018:

  • finding the lowest gas and electric carriers
  • finding the best, most affordable health insurance supplement

Correcting the mistake made in my 2016 taxes involved both an outlay and a savings:

  • finding an affordable tax preparer and
  • receiving the refund I was owed

And that doesn’t take into account the hours spent dealing with the Equifax breech and collecting the documents the Job Center needed to determine if Nicole will still be eligible for medicaid help.

And then, of course, there is life:

  • grocery shopping
  • cooking
  • cleaning (to pay for Nicole’s tub, we let our house cleaner go)
  • doctor appointments

All that interfered with what I really wanted to do:

  • promote my memoir
  • prepare my home for Jacqui’s return from Taiwan so she could  move in

What frays my nerves and pushes me close to the edge of insanity is:

  • automated answering systems

It is next to impossible to get a human being anymore. And what should take minutes, takes hours. It is unbelievable what all is involved in getting instructions or the answer to a simple question. I even found an article about it here and here and here.

Twice this week, I was put in a queue and promised a call back. I’m still waiting.

Monday, we cut the cord with cable TV. Upgrading our internet was a breeze. Changing phone carriers and learning to use our new streaming device was not.

Thank God for Jacqui. She is far advanced beyond Nicole and me in her understanding of technology. And she is willing to help. Nicole and I have made progress in understanding how to use Apple TV and Hulu and we still have a ways to go. I’m happy with the dollars we are saving.

An awareness I didn’t expect, after witnessing Jacqui’s very different manner, was noticing how contracted and defended I have become. I approach armed and ready … alert in every interaction to being taken advantage of and cheated out of my hard-earned money. Of course, the customer service representatives are not to blame. They don’t make the policies. They are just trying to make a living. And they bear the brunt of our increased stress. And that isn’t good for any of us.

I firmly believe that the rampant greed and contentious climate in our culture today contributes to our stress. Clearly I’m not alone as the articles I referenced above prove. Whew!! However, watching Jacqui joke with customer service representatives and extend kindness to them brought me up short.

Being tense, anxious, defended, and contracted are not ways I want to be.

So, I am increasing my motivation by embarrassing myself here and revealing one of the worst parts of me. My plan for change is:

  • determine what I want and need before the call or encounter
  • breathe deeply
  • set my intention to be kind to the rep and to my body
  • and to assertively ask for what I want and need.

These are skills I have possessed for a very long time. I plan to start being intentional about using them again.

 

 

 

 

 

 

 

 

 

Deciding to Change

This post was originally written on September 4. It is a bit dated. I’m late in posting it because when I returned from my trip to the MDF conference in San Francisco (September 7-10), my experience there was more pressing. Then I had computer problems and my September 11 post was finally able to be delivered on October 9. I hope to be back on track now. Thank you for bearing with me.

The television program commemorating the twentieth anniversary of Princess Diana’s death on August 31, “Diana, In Her Words,” portrayed Diana maturing before our eyes. At first shy and reticent, she peered through her eyelashes as she held her head down, a close-lipped smile spreading across her face.

Later, with her shoulders back and her head held high, her eyes glistened as she flashed broad smiles.

During her interview for the program which was used this year to commemorate her death, Diana reflected on the moment she decided to change. Instead of succumbing to the self-defeating behavior issuing forth from her fear and jealousy, she resolved to focus outward on the downtrodden, making advocacy for them her life’s work.

She decided to align her efforts with a purpose larger than herself.

 I remember the moment I decided to change.

“… I felt ripped apart, like a fraud living a double life. I hated the incongruity …. It needed addressing, and I felt ready to face the challenge. I felt ready to make a change. And a big change was what was called for.”  ~excerpts from A Long Awakening to Grace.

 

“Unnerved at first, I felt as though I had been dropped into an alien world.” Page 125 of A Long Awakening to Grace

“It is in facing your conflicts, criticisms, and contradictions that you grow up. You will remain largely unconscious as a human being until issues come into your life that you cannot fix or control and something challenges you at your present level of development, forcing you to expand and deepen. It is in the struggle with your shadow self, with failure, or with wounding, that we break into higher levels of consciousness.” ~Richard Rohr

Almost thirty-three and a half years later, I am eternally grateful that I made that decision, took the steps to change, and stayed with it when the going got rough. I would not trade where I am today for where I was in April 1983. I learned that in that so-called “alien world,” I received the life-giving nurturance I needed to blossom and thrive.

As I listened to Diana reflect on her life and as I reflect on my own, I wonder ~~

What in your life do you need to change … or have you found the need to change in the past?

What step is the still, small voice of wisdom within encouraging you to take … or did encourage you to take in the past?

If you have decided to make a change, in what ways are you wiser today than you were when you took those first faltering steps? 

What change could you currently pursue that would lead you to higher levels of consciousness?

Exploring questions like these are the kinds of conversations that fuel my enthusiasm for life.

Strength in Weakness

“…for when I am weak, then I am strong.” ~II Cor. 10b

Due to website problems preventing subscribers from receiving posts, this is a re-post of my September 11 post.

The most important instruction given to those writing a memoir is to be honest about our shortcomings and to be generous in describing others so as not to demonize them. That is why we are encouraged to wait until the stings of life no longer throb intensely before we embark on writing a memoir for publication … keeping our eye on writing a story that serves a larger purpose and can be useful to others. It is a process.

In my process, for years I poured out my agony in my prayer journals, writing about shame-filled events that I have always had difficulty talking about. Finally, I reached the point where I was ready to embark on seriously writing a memoir.

Writing my story in a way that might be beneficial to others forced me to dig deeper and discover the treasure hidden in my pain. As a result, I emerged with a whole new and transformed perspective on my life and the people in my life.

Still, shame and fear of judgment prevented me from giving voice to some of my most painful experiences. Now that my memoir has been published, I worried about how to handle book signings. What parts of my book would I be comfortable sharing verbally with others.

Knowing that writing honestly opened me to criticism, I have kept Brene Brown’s book, Daring Greatly, on the book shelf above my computer as inspiration to keep moving forward. And because my book is now published and it is time to share my story with the world, I have kept Deborah Winegarten‘s wise counsel before me.

A special sister writer, Deborah focuses on the greater purpose her books serve ~~ giving her opportunities to connect with others and be present to them in their need.

And so, this past weekend I took my books to the Myotonic Dystrophy Foundation (MDF) conference in San Francisco. And by the way, Deborah joined me at her own expense to give me support and sell my books so I could connect with other conference attendees. She walks her talk and has fun no matter what she is doing. A great role model for me.

Deb Winegarten selling A Long Awakening to Grace

The first morning before heading to my author table, I sat on the edge of my bed and set my intention … to be present to the needs of others as I connected with them and to be mindful of my larger purpose in writing this book.

Myotonic Dystrophy (DM) is a multi-faceted disease with numerous physical, behavioral, and psychological components. Because the physical is easier to address, researchers have put their energy there. However, the behavioral and psychological cause the most concern and produce the most emotional pain for those carrying the disease and their caregivers. I have shared a wish with other members of the community that researchers give more attention to this aspect of the disease.

My opportunity to share my concern came during this Friday morning session: “Bringing the Patient Voice to Central Nervous System Targeting Drug Development.” James Valentine moderated while five patients and caregivers shared their experience. Then the floor was opened to hear from conference participants. I raised my hand immediately because the panel had not addressed the concern that is central in my family’s experience of this disease.

After a couple of other people shared, Mr. Valentine handed the microphone to me. I pointed out that the panel had not addressed anti-social behaviors ~~ the behaviors that my son had exhibited. I pointed out that I shared a concern with one of the founders of MDF that researchers address these behaviors. Then Mr. Valentine said, “Would you be specific about the behaviors your son exhibited.”

I gulped. And then I reminded myself of my intention set that morning to focus on the larger purpose of my memoir and my attendance at this conference. I hoped research would prevent other families from going through what we went through.

My hands began to shake. I looked at Mr. Valentine and told him that it is still very difficult for me to talk about. And then, in that ballroom full of nearly three hundred people, I gave voice to the behavior that had caused our family the most shame and pain. I shared how I had handled this behavior, noting that others may judge me for that, but it was what I had to do to preserve myself. Mr. Valentine thanked me and said the information I gave is needed.

“Shame derives its power from being unspeakable.” ~Brene Brown

Immediately, other conference participants approached me at the table where I sat tearful and still shaking to give me hugs and thank me. Later, in the restroom, a new member of the board wrapped her arms around me and said, “You are the bravest of a roomful of brave people.” Another woman noted how I had shared with courage and grace. For the rest of the conference, I received hugs and expressions of gratitude. I was told there are many in the room who could relate to what I had shared.”

One of my new DM friends asked me, “Are you glad you shared?”

I replied, “Sharing that was life-changing! I got a monkey off my back.” I am aware that judgment and criticism may still come, but in the warm embrace of my DM sisters and brothers who know, the shame demon I’ve carried for far to long dissapated like the warmth of the sun burning off fog.

If you read my memoir, you will know how big that was for me. It is a huge piece of being faithful to the person I was created to be … to fulfilling my purpose for this sojourn on earth. I hear the God of my understanding, my True Self within, proclaiming, “Well done my good and faithful servant.”

“Before I formed you in the womb I knew you, and before you were born I consecrated you;” ~Jeremiah 1:5a

Another Step Forward

In my July 2016 post titled A Second Chance, I reflected upon my daughter’s inability to continue working and need to move in with me following her surgery. I wrote, “The treasure I found is the ‘opportunity’ my daughter’s living with me gives. I am being given a second chance to extend love to her, up close and personal, in ways the immature self of my past was unable.

It is a bit of a miracle how well we have adjusted. My friends who watched me struggle in the early months are amazed at how my relationship with Nicole has evolved. I’m kind of amazed myself.

During my five months of struggle to accept our new reality, I realized that my relationship with my daughter was more important than keeping my home perfect. I intentionally let go of having my sanctuary in perfect order. That is something the immature me from my past could not have accepted.

To my delight, my daughter has worked to respect my need for order and beauty in my living environment. She is neater than she used to be and has voluntarily assumed responsibilities without my even having to ask. That has meant a great deal to me.

Then, about a month ago, she approached me and said, “Mom, if I could afford one of those walk-in tubs, would you let me get one?”

 

I knew she couldn’t afford it, but told her to go ahead and explore it. I thought her realizing that for herself was better than my nixing her request, something my immature self would have done.

And so she made a date with a salesperson to come talk with us. As I listened to his explanation of the benefits, my perspective started to shift. I thought this might work well for me, too.

As long as Nicole lives with me, I don’t have the option of moving into an assisted living facility. I’m not ready for that yet, but foresee the day when it might be a welcome option. The salesperson spoke about home healthcare aids having an easier time bathing frail, elderly people. That would address one of the issues I might face as I grow older.

The salesperson went outside and left us alone to make a decision. Nicole asked me, “What are you thinking, Mom?”

Later, as I reflected on our conversation, I realized that our relationship  had shifted from a hierarchical mother-daughter one to a more equal partnership.

I told her what I realized about how the tub could benefit me as well. Then I addressed the issue of finances. “This is how much money you have to put toward it. This is how much I could put toward it. The rest we would have to finance. That means we would need to reduce our monthly expenses.”

Her immediate response astounded me. “I’ll give up watching the Hallmark Channel.” That is a major form of entertainment for her. I suggested we visit some friends who have cut the cord with cable and explore alternative ways of watching our favorite programs. She agreed and we are in the process of taking this step.

I told her we could make a game of saving money.

I mentioned that she spends a lot of her grocery money on snacks, that they are expensive, and they aren’t good for her anyway. She is definitely her mother’s daughter. She loves potato chips as much as I did before a stent being placed in my heart in 2005 convinced me they were a luxury I could no longer afford. Nicole has not eaten a potato chip since we made this decision. Another huge decision for her.

The hardest thing for me to give up was having the house cleaned once a month. We decided to do it ourselves and we did a pretty good job working on it together. That is truly a miracle in itself. Still, I hope we will be able to add that back in after our other cost-cutting endeavors.

Nicole’s tub was installed last week. Here she is showing it off to Jacqui, who is living with us for awhile., having just returned to the States after a year in Taiwan. (And Jacqui hasn’t turned gray. She was being silly and wearing a wig.)

That tub is definitely evidence that my relationship with Nicole has entered a new phase. We have both shown evidence of maturing in our ability to demonstrate our love for each other. I am eternally grateful for this step forward on both our parts.

P.S.: I treated her to a bag of potato chips this week. I thought she had denied herself long enough. 🙂

Strength in Weakness

“…for when I am weak, then I am strong.” ~II Cor. 10b

The most important instruction given to those writing a memoir is to be honest about our shortcomings and to be generous in describing others so as not to demonize them. That is why we are encouraged to wait until the stings of life no longer throb intensely before we embark on writing a memoir for publication … keeping our eye on writing a story that serves a larger purpose and can be useful to others. It is a process.

In my process, for years I poured out my agony in my prayer journals, writing about shame-filled events that I have always had difficulty talking about. Finally, I reached the point where I was ready to embark on seriously writing a memoir.

Writing my story in a way that might be beneficial to others forced me to dig deeper and discover the treasure hidden in my pain. As a result, I emerged with a whole new and transformed perspective on my life and the people in my life.

Still, shame and fear of judgment prevented me from giving voice to some of my most painful experiences. Now that my memoir has been published, I worried about how to handle book signings. What parts of my book would I be comfortable sharing verbally with others.

Knowing that writing honestly opened me to criticism, I have kept Brene Brown’s book, Daring Greatly, on the book shelf above my computer as inspiration to keep moving forward. And because my book is now published and it is time to share my story with the world, I have kept Deborah Winegarten‘s wise counsel before me.

A special sister writer, Deborah focuses on the greater purpose her books serve ~~ giving her opportunities to connect with others and be present to them in their need.

And so, this past weekend I took my books to the Myotonic Dystrophy Foundation (MDF) conference in San Francisco. And by the way, Deborah joined me at her own expense to give me support and sell my books so I could connect with other conference attendees. She walks her talk and has fun no matter what she is doing. A great role model for me.

Deb Winegarten selling A Long Awakening to Grace

The first morning before heading to my author table, I sat on the edge of my bed and set my intention … to be present to the needs of others as I connected with them and to be mindful of my larger purpose in writing this book.

Myotonic Dystrophy (DM) is a multi-faceted disease with numerous physical, behavioral, and psychological components. Because the physical is easier to address, researchers have put their energy there. However, the behavioral and psychological cause the most concern and produce the most emotional pain for those carrying the disease and their caregivers. I have shared a wish with other members of the community that researchers give more attention to this aspect of the disease.

My opportunity to share my concern came during this Friday morning session: “Bringing the Patient Voice to Central Nervous System Targeting Drug Development.” James Valentine moderated while five patients and caregivers shared their experience. Then the floor was opened to hear from conference participants. I raised my hand immediately because the panel had not addressed the concern that is central in my family’s experience of this disease.

After a couple of other people shared, Mr. Valentine handed the microphone to me. I pointed out that the panel had not addressed anti-social behaviors ~~ the behaviors that my son had exhibited. I pointed out that I shared a concern with one of the founders of MDF that researchers address these behaviors. Then Mr. Valentine said, “Would you be specific about the behaviors your son exhibited.”

I gulped. And then I reminded myself of my intention set that morning to focus on the larger purpose of my memoir and my attendance at this conference. I hoped research would prevent other families from going through what we went through.

My hands began to shake. I looked at Mr. Valentine and told him that it is still very difficult for me to talk about. And then, in that ballroom full of nearly three hundred people, I gave voice to the behavior that had caused our family the most shame and pain. I shared how I had handled this behavior, noting that others may judge me for that, but it was what I had to do to preserve myself. Mr. Valentine thanked me and said the information I gave is needed.

“Shame derives its power from being unspeakable.” ~Brene Brown

Immediately, other conference participants approached me at the table where I sat tearful and still shaking to give me hugs and thank me. Later, in the restroom, a new member of the board wrapped her arms around me and said, “You are the bravest of a roomful of brave people.” Another woman noted how I had shared with courage and grace. For the rest of the conference, I received hugs and expressions of gratitude. I was told there are many in the room who could relate to what I had shared.”

One of my new DM friends asked me, “Are you glad you shared?”

I replied, “Sharing that was life-changing! I got a monkey off my back.” I am aware that judgment and criticism may still come, but in the warm embrace of my DM sisters and brothers who know, the shame demon I’ve carried for far to long dissapated like the warmth of the sun burning off fog.

If you read my memoir, you will know how big that was for me. It is a huge piece of being faithful to the person I was created to be … to fulfilling my purpose for this sojourn on earth. I hear the God of my understanding, my True Self within, proclaiming, “Well done my good and faithful servant.”

“Before I formed you in the womb I knew you, and before you were born I consecrated you;” ~Jeremiah 1:5a

The Voice Inside

August 31, we observed the 20th anniversary of Princess Diana’s death. My daughter and I watched a couple of the many television programs commemorating her life. I found myself paying close attention to “Diana: Her Own Words” based on the interviews she gave for Andrew Morton’s book, Diana: Her True Story.

“Everyone who wills can hear their inner voice. It is within everyone.” ~Mahatma Ghandi 

What struck me most as I listened to Diana reflect on her life was the number of times she referred to “the voice inside.” Throughout, her inner voice of wisdom spoke to her powerfully and humbly. Despite all the hoopla that surrounded her, she noticed and observed the wisdom that lived within her. She did not always heed the wisdom revealing the truth aligned with her soul.

I suppose I took note of this part of Diana’s story because I could relate. I, too, did not always heed the guidance coming from my inner voice of wisdom. I paid more attention to outside influences than to nudges from my soul. It is in that juncture that true suffering is born. It is part of what contributed to my awakening to grace being so long.

“I took note of this unmistakable warning–the first time I had received such an unambiguous message from the still, small voice of wisdom within. The next day I tried to give expression … I was unable to advocate for myself. Sadly, I possessed little relationship with my depths, my inner voice of wisdom. … I didn’t know myself or the importance of choosing a path in alignment with my soul.” ~excerpts from A Long Awakening to Grace

Just as Diana did, I tried to make the best of the wrong turns I had taken in my life. I discovered that if I kept my heart open and trusting, I would learn valuable lessons along the way.

  • All is not lost when we take a wrong turn.
  • There are treasures to be found in our suffering and in our search for the meaning of our life.
  • In silence and stillness, and sometimes in our dreams, we are more likely to hear our inner voice of wisdom.
  • Contemplative writing often results in wisdom flowing from our pen. (We can experience wisdom flowing from any form of meditation or artistic expression.)
  • In nature, if we pay attention, Divine wisdom and guidance often emerges.

“If you have a deep desire to move forward, a way is being prepared for you.” ~Bryant McGill

It was speculated that Diana was looking for a new way to move forward in her life when she died at thirty-six. And while we will never know the extent of the life lessons she learned in her short life, it was clear to me as I watched this program that she had already learned a few valuable lessons. Perhaps the intensity of her experience forced her to learn more quickly. I have no doubt that if she had lived, she would have grown in her ability to trust her “voice inside.”

Fortunately for me, I had many more years to learn to listen to the still small voice of wisdom within me … to glean the treasures from my life experience…treasures I share in

 

Making Outrageous Requests

My SCN sister writers and I have been learning how to make Outrageous Requests. Our teacher, Debra Winegarten, is a master at it. She says the important thing is to ask. We never know what response we will get … “Yes,” “No,” or a counter offer. I’ve been practicing.

Outrageous Request #1:

Last February during my daughter’s appointment, I asked Dr. Kissel, “Do you have time to read anything besides medical-related literature?”

John T. Kissel, M.D.
Chair, Dept. of Neurology
Director, Division of Neuromuscular Medicine
OSU Wexner Medical Center

He said he did.

“Okay, then I’m going to make an outrageous request.” I pulled a packet from my bag and handed it to him. “Would you read my memoir?”

His eyes widened. The packet was huge because my approximately 80,000 words were double spaced and printed on one side of 8 1/2 by 11 paper.

Then I said, “If you like it, I’d be honored if you would give me a blurb for my back cover.”

“How soon do you have to have it?” he asked.

I didn’t know. I was still in the final stages of working with my developmental editor, and my manuscript hadn’t yet been copyedited. I hadn’t submitted it to that prestigious hybrid publisher for vetting.

Fast forward to July 2017. During my mad dash toward publishing with April’s assistance, I contacted him and said, “If you are willing to give me a blurb, now would be the time.” He actually sent me two and below is the one I chose:

“One of my physician colleagues, when asked how he dealt with ‘such depressing neuromuscular diseases,’ replied, ‘I have the greatest job in the world because I get to work with heroes every day.’ This remarkable memoir chronicles one such hero’s quest to find an answer to a genetic riddle that had severely impacted her family for decades. The story is moving, meaningful, and inspiring and reading it has made me a better doctor. It is a tremendous resource for other families in similar situations.”  ~John T. Kissel, M.D.

We couldn’t fit all that on the back cover, so we edited to capture the essence of what he wrote. I think he will approve.

“This remarkable memoir is moving, meaningful, and inspiring. Reading it has made me a better doctor. It is a tremendous resource for families dealing with genetic riddles.” ~John T. Kissel, M.D.

What a gem of a doctor, Dr. Kissel is. I’m so grateful he is in my daughter’s and my life. The first time we saw him, he asked me how I was doing. He is the first doctor ever to do that. I breathed a sigh of relief. Finally we have a doctor who gets it.

Outrageous Request #2:

With time being of the essence, I didn’t think I had time for my original plan for my memoir’s cover. So I started looking for an alternative.

That artist/photographer from Paris I featured in my June 30 post had a project that fascinated me, Mimesis. I was drawn to one of Janiak’s images and thought it would be a good choice for the cover.

I imagined that, even if Jeb gave me permission, it would be way out of my price range. But I wouldn’t know unless I made an OR. And so I did. He didn’t respond immediately, but when he did, he was willing for me to use the image, at a fair price I thought. But because he is busy working on another project, he didn’t have time to draw up a contract. I didn’t feel comfortable not having a contract, but was proud of myself for asking. And I got a better response than I anticipated.

Outrageous Request #3:

It is also important to have another writer in your genre give you a blurb. One of my Story Circle Network sister writers is an award-winning memoirist from whom I have learned a lot. My memoir is better and deeper because of what Susan J. Tweit has shared in our group about the process of writing memoir.

Susan J. Tweit

When I read Susan’s memoir, Walking Nature Home: A Life’s Journey, I experienced her as a deeply spiritual woman. I knew she would understand the spiritual aspect of my journey.

I knew what all Susan had on her plate. I would have to make a HUGE OR. I gathered my courage and on July 16, I sent her an e-mail request.

It is customary to give another author at least three months to read and respond. Only if your writing and story are good enough, something an author would feel okay about putting their name to, do you get the requested blurb.

Susan had to think about it and see if she could work the reading into her already packed schedule. When I heard from her, she let me know there was no guarantee she would be able to give me a blurb, but she wanted to be supportive. She gave me a time frame and said if I didn’t need it until then, she thought she could get the book read.

I gave her five more days and told her I would be disappointed if she didn’t like my memoir, but would still admire her and would deal with it. I didn’t want her to feel obligated or pressured in anyway. I wanted her honest assessment. And so I waited.

She finished one of her writing assignments early and was able to work reading my memoir into her schedule. She didn’t need the extra five days. She saw my book as written in a way that will be helpful and inspiring to others. I was thrilled, as you can imagine, with her affirmation:

“A Long Awakening to Grace shows the transformative power of an open heart and questing spirit. Faith buoys Linda Marshall through decades of family pain and tragedy caused by a mysterious genetic condition. Over the course of this inspiring journey, love opens the way for profound healing.” ~Susan J. Tweit

Pure Gift … I didn’t even have to ask:

And then April, author of five novels and self-publishing champion and my mentor par excellence, generously gave me a blurb for inside the book. She captures another part of the story:

“Linda’s memoir is more than just a retelling of her life story. This work of nonfiction functions on so many levels. In addition to being a brilliantly insightful spiritual exploration and narrative about a rare genetic disorder, it’s the quintessential story of the American woman born in the 1940s, growing up in the 1950s, and dealing with stifling gender roles imposed on American women of that era.”

As you can see, I am richly blessed … and these past few weeks I’ve been experiencing showers of blessings. Please celebrate with me. I am so grateful.

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